Colin was diagnosed with type 1 diabetes back in 1967, at the age of 19. The tools of diabetes management weren’t what they are today and he had to use glass syringes to inject his pork insulin, and initially spent time in hospital for his blood glucose to be balanced. Colin started to adjust to this new way of life but was often worried about his levels going too high.
However, he wouldn’t let his diagnosis stop him. At age 22 he graduated from university and soon became a teacher at a local high school. Getting the job wasn’t easy. The Department of Education wasn’t keen on employing a person with diabetes, so Colin had to fight, with the help of his union, to take his place at the school.
The fight was worth it. Colin ended up having a long and influential career teaching maths and physics to young people in his local area and found life-long friends among staff at the school.
In 2001 Colin heard about a small charity called Life for a Child. The charity had been set up to support young people living with type 1 diabetes in low-income countries by providing them with insulin, a blood glucose meter, strips and diabetes education. Colin really felt for these kids and believed in the charity’s vision: no child should die of diabetes. He immediately set up a monthly donation. Colin continued to give a generous gift every month for 15 years, until he passed away in 2016 at age 67.
After his death, his brother Allyn wanted to make sure that Colin’s legacy of compassion would live on. He has donated substantial amounts to Life for a Child in order to provide diabetes care to young people in need in Tanzania and Mali, in memory of Colin.
Life for a Child’s General Manager, Dr Graham Ogle said: “Many families with a child with type 1 in Tanzania can’t afford insulin and supplies. Thanks to the support of wonderful donors like Colin and Allyn, Life for a Child is able to provide them with a lifeline. Their donations are helping young people like Anita (pictured below).”
Anita has been supported by Life for a Child since 2005. With support she has been able to flourish and, today she is doing really well. She is a co-founder of the Tanzanian Diabetes Youth Alliance where she helps other young people dealing with the ups and downs of managing type 1.
There are many ways you can help to provide support for young people like Anita, from fundraising to pledging a bequest and many more. To find out how you can help click here.
We are living in a time where governments are prioritizing policies that ensure their citizens have access to affordable health care. Indeed, even within less-resourced countries, governments are introducing Universal Health Coverage (UHC) programs aimed at eliminating the financial burden of health care for the population.
At Life for a Child we aim to ensure that the needs of young people living with type 1 diabetes are included in the development of UHC programs globally.
To understand the current landscape we began a study looking at national service provision, affordability, and availability of insulin and test strips in 37 less-resourced countries, and compared findings to the situation in 7 high-income countries.
We found that whilst some health systems are providing insulin, a proportion are not subsidizing the costs. On the whole, the situation was markedly worse for blood glucose test strips as these were not even provided in most health systems we assessed.
We demonstrated our results through a novel graphic approach, above you can see a table from the paper which shows patterns from the 37 less-resourced countries. Within the whole study information from seven high-income countries were included: Australia, New Zealand, Japan, UK, Sweden, Italy, and France.
We are hopeful that the paper’s findings and discussion will foster much-needed attention towards the lack of national health system provision, affordability, and availability of insulin and test strips in Life for a Child supported countries.
Our vision is to encourage governments to cover these two supplies so that young people with type 1 diabetes can benefit from emerging national UHC programs and go on to live safe, productive, and fulfilling lives.
To download the study click here.
Note: Life for a Child’s research is funded by The Leona M. and Harry B. Helmsley Charitable Trust.
Life for a Child is providing quality care for children and adolescents with diabetes from lower-income families in Mexico.
Sustainable progress has been made for diabetes care in Mexico, where three of the largest health systems provide human insulin free of charge to enrolled members of the population.
Insulin provision is an important step on the road to sustainability. However, access to insulin is only one piece of the puzzle for diabetes management. Self-monitoring of blood glucose is another crucial component, but none of the health systems in Mexico provide the necessary supplies.
Life for a Child helps to fill the gaps for families in need, by providing meters, strips and lancets to 554 young people across the country. This support enables them to monitor their blood glucose and manage their diabetes effectively.
In addition to supporting the immediate needs of young people with diabetes, it is part of Life for a Child’s mission to promote sustainability within the health systems that young people living with diabetes rely upon. To this end, we carry out research to give stakeholders a clearer view of the situation for young people with type 1 and advocate for improvements within the health system.
A study was undertaken by Life for a Child, in collaboration with the Mexican Diabetes Associations in the states of Nuevo Leon, Guanajuato, Guerrero, and Merida and the NHMRC Clinical Trials Centre in Sydney. The study describes the types and results of the current levels of care provided to young Mexican people with diabetes from lower-income families.
The results of the study showed that acceptable levels of blood glucose control are achievable in Mexican children when supplies and education are provided.
The graph below shows that the mean HbA1c results from Life for a Child supported centers in Mexico are not dissimilar to the most recent results from the T1D Exchange network of 50 leading US clinics. This is a great result and a tribute to the health professionals in the Mexican centers, the families, and the impact of the support Life for a Child provides, thanks to donors and partners.
Our hope is that the findings of this study can influence the Mexican health systems to begin providing these essential supplies and improve care for young people living with type 1.
You can help us continue to provide blood glucose monitoring supplies to young people by making a donation.
To find out more about the study click here.
This research was supported by The Leona M. and Harry B. Helmsley Charitable Trust.
Not only does 24-year old mum Anabel live with type 1 diabetes, but so do all three of her young children. Hear her story.
“To stand up with such responsibility is very painful. It is not easy to live with the diabetes of my three children. When I see high blood glucose levels it brings me depression, feelings of guilt.
When I was 22, I had two children, Paulina and Tomás. At six years old Paulina was diagnosed with type 1 diabetes. It was very hard to prick her skin with injections, and we had to make a lot of changes to our life. Thankfully, the diabetes center gave us insulin, supplies and diabetes education, so we managed quite well and life went on.
Until, six months later, when I started to feel tired and was going to the toilet a lot. I tested my own blood with Paulina’s meter. I was so surprised to see that I had a high level, and soon I, like my daughter, was diagnosed with type 1 diabetes.
A year went by and my little boy Tomás started to show symptoms. I tried to ignore it at first, but sure enough, when I tested his blood he was also high and went on to be diagnosed with type 1 diabetes. He was just 4 years old.
I was distraught, all three of us now had diabetes. I felt that this disease must be contagious and decided to leave the diabetes center. There seemed to be no other way to protect my children. However, without the insulin, I saw the levels rise and realized that we must all go back to the center. Luckily we didn’t stay away for too long.
Then along came my third daughter, Carminia and the same process took place – at 1 year and 2 months I started to notice the things I had observed my other children. Carminia was underweight, urinated a lot and cried. I tested her blood and her glucose level was 300mg/dl. My third child was diagnosed with type 1 diabetes.
Today, Carminia is 2 and a half, Tomás is 8 and Paulina is 10. Paulina is very intelligent, she helps her brother with his schoolwork and also helps me when I feel very low. It has been very hard dealing with the condition but with the help of the diabetes center and the insulin and supplies, we are managing.
Living with diabetes is the hardest thing that has ever happened to me.”
You can help us support Anabel, Carminia, Tomás, Paulina and other young people like them by making a donation today. Just $30 can provide a child with insulin, strips, diabetes education and support for two months. Donate Today.
Life for a Child General Manager Dr. Graham Ogle and Health Systems Specialist Emma Klatman joined the Harvard Humanitarian Initiative in Boston to sign the declaration: “Diabetes in humanitarian crises: the Boston Declaration” published on June 6, 2019, by the Lancet Diabetes Endocrinology journal.
Chronic health conditions can be difficult to manage, and as type 1 diabetes is fatal without proper treatment, it is of vital importance that governments in under-resourced countries move towards more effective diabetes programs.
For type 1 diabetes ongoing care is so important and in times of crisis the level of care plummets. This can exacerbate life-long conditions and lead to complications both immediate and long-lasting. Hundreds of millions of people are conflict-affected or displaced globally and the economic and human costs of crises in less-resourced countries are staggering.
This poses an overwhelming task for governments and health-care providers in crisis-affected regions as effectively managing type 1 diabetes requires a high level of complex care. Humanitarian responders and local health-care workers are often ill-equipped to provide adequate care which puts people with type 1 at serious risk of long-term complications or death.
To combat this scenario, Harvard University assembled global health and humanitarian specialists in Boston, Massachusetts in April 2019 to outline four key targets to work towards over the next 3 years – these form the Boston Declaration:
1. Unified and strengthened advocacy for medical care in times of crisis.
2. Universal access to insulin and other essential medicines and diagnostics for glycaemic and blood pressure control in humanitarian crises.
3. Establishment of a unified set of clinical and operational guidelines for diabetes in humanitarian crises.
4. Improved data and surveillance of the prevalence of diabetes, access to care, patient burden, and patient-centered outcomes in humanitarian crises.
These targets are achievable and essential for mitigating the vast costs of life-long health problems associated with under-treated type 1 diabetes. Governments, advocates, disaster relief organizations, and other actors in global health must heed the call to action provided by the Boston Declaration. The signatories of the declaration will hold meetings annually to track the progress on each target.
The inalienable human right to a life with dignity is incompatible with barriers to adequate health-care. These four targets provide a roadmap for the delivery of vital care to those with type 1 diabetes in times of crisis.
To see the Boston declaration in full (free with registration) click here.
“I don’t like it, it’s hard work” said 12 year old Akbar.
Summed up in an honest and simple way, this is how he feels about having diabetes. Akbar was speaking to a room of 40 doctors and nurses at a training workshop in Uzbekistan. Designed to give young people and their family’s space to explain their feelings and experiences around diabetes, it was valuable for the health professionals to hear from ‘the other side’. The voice of the patient and parent can, unintentionally, often be forgotten on busy clinic days.
Life for a Child Education Director, Angie, asked Akbar’s mother how she felt when her son was diagnosed two years ago. “I was shocked – that part of my life is missing’’. She held her son’s hand tightly and was close to tears, noticeably grief-stricken.
Akbar didn’t say much more. His mom said that his attitude had changed over the past year and he no longer wants to talk about his diabetes, he just wants it to go away.
She explained their management routine and how Akbar’s father gets up at 3 o’clock every night to check his blood glucose levels. Akbar’s older brother and sister are protective of him and watch out for high and low blood glucose levels. There is a strong sense of solidarity amongst Akbar’s family; they all eat the same foods and the kids enjoy walking together.
“His friends were very pleased to see him when he returned to school as he had been absent for 2-3 months when first diagnosed,” Akbar’s mom said. Only some of his teachers know about his diabetes. Thankfully, those who do know are very helpful.
When Angie asked Akbar’s mom if she was beginning to feel more hopeful, or if things were still difficult, she said, “It will always be difficult”.
Saffiya is 15 years old and along with having type 1 diabetes, she has sensorineural deafness. She didn’t want to be interviewed so her mother spoke for her. The diabetes diagnosis was ‘a terrible shock to the entire family’, she said.
Diabetes has had a devastating impact on Saffiya’s life; her school refused to allow her to return after diagnosis. Her only alternative was home-schooling. For Saffiya, this exclusion prevents her from joining in with important social activities, such as her much-loved dancing hobby. As there is no dance school in her village, and she has no friends of her own age she has stopped dancing. This is extremely difficult for Saffiya. It also makes it challenging for Saffiya’a mother to ‘let go’.
Sadly, it is common for children with diabetes to be refused entry into school. With the correct mediation and advice for schools from health professionals with expertise in type 1 diabetes, progress can be made, and this kind of discrimination can be minimized – education is the key.
At the end of the session, Angie asked Saffiya’s mother if she would like to send a message to the health professionals in the audience. Emotionally she exclaimed, “To you, we are one of many….to us, diabetes is our life, please be more caring towards your patients and their families. We also want a cure”.
A powerful and heartfelt statement.
For just $30 you can provide a child like Saffya with insulin, supplies diabetes education and care for a month. Give a critical lifeline to a child today by making a donation today
The workshop was developed in conjunction with the International Society for Pediatric and Adolescent Diabetes.
We would like to thank Professor Said Ismailov and his team, together with the visiting Paediatricians, Paediatric Endocrinologists and nurses from all over Uzbekistan or who welcomed us so warmly to their beautiful country.
Thank you also to Dr Debra Cohen for participating in the training workshop and the children and parents who had the daunting task of sitting in front of an audience whom they hardly knew, speaking of very personal and painful topics.
Dr. Graham Ogle, one of the founding members and current General Manager of Life for a Child was presented with the Sir Kempson Maddox Award at a ceremony in Sydney, Australia. The award is Diabetes NSW & ACT’s highest accolade, and is given to a person who has made a significant contribution toward helping to improve the lives of people living with diabetes.
In 2000, Graham was invited by Professor Martin Silink to develop the IDF Life for a Child program to assist children and young people with diabetes in less-resourced countries. In the subsequent 18 years that Graham has been General Manager, the program has gone from strength to strength, and is currently supporting more than 18,500 young people with diabetes in 41 countries with insulin, diabetes supplies and education resources.
Graham has worked tirelessly to improve the outcomes for young people who live in some of the most vulnerable communities in the world, where access to supplies and expert care is limited. He has established important international collaborations that have led to various novel research, mentoring and advocacy initiatives.
Despite significant progress in recent years, Graham says there is still a long way to go, ‘An estimated 80,000 young people still need supplies and we have a waiting list of countries that need support’.
Graham has also been awarded the Harold Rifkin Award for Distinguished International Service in the Cause of Diabetes by the American Diabetes Association, the Cross of Medical Service by the Government of Papua New Guinea, and the Jeff Hitchcock Distinguished Service Award from Children with Diabetes. Graham has been a member of two IDF Task Forces and a Commissioner in two Lancet Commissions on Diabetes.
We arrived in Addis Ababa, Ethiopia at 5 in the morning after flying 19 hours and stopping in Dublin on Air Ethiopia – which other than the food and the movies – was wonderful.
Driving to our hotel we couldn’t help but compare the sights out the window to Haiti, where we have helped conduct a camp for children with diabetes every year since the earthquake in 2011. Addis Ababa is congested, chaotic, filled with shanties and shacks, but much less so than Haiti – and due to its elevation, without sweltering heat.
Remarkably, the Ethiopian clock is 6 hours behind the international clock, the year is 2010, and the New Year starts in October. Despite an unexplainable calendar, almost everyone who is educated is fluent in English, which is taught starting in kindergarten.
After settling in, we were on our way to see Ethiopia with a guide and our host who runs the Ethiopian Diabetes Association. We saw mountains, churches and pilgrims who wait outside the church for holy water.
The next day work began; we gave 8 lectures, answered hundreds of questions, and were delighted to meet and work with 50 physicians and nurses who were clearly dedicated, educated, and motivated to be the best caregivers for children with diabetes.
This includes the 3,500 children and young adults who receive their care and diabetes supplies for free through the IDF Life for a Child Program, led by the indefatigable Dr. Graham Ogle from Australia. Graham is the reason we went to Addis and he has been a terrific coworker, travel partner, and friend.
Many of the children with diabetes are in a coma when they are diagnosed, and it is likely many more die before that. Remarkably, while the exact incidence of type 1 diabetes in Ethiopia is not known, it is clear the rate of new cases is increasing – and in some areas of the country, this increase is felt to be astronomical. Diabetic ketoacidosis post diagnosis requiring hospitalization is quite frequent, confirming the challenges of managing diabetes in such a poor, stressful environment.
As part of our lectures, Neal interviewed children, teens, and young adults with diabetes and some of their mothers.
Each had an amazing story. One of the young adults was so angry after his diagnosis by the limits his parents imposed on him, he stopped eating for over a month. Despite wasting away, he told no one what he was doing (his parents thought it was his diabetes) until he collapsed. The resolution came when his parents realized he might die if he wasn’t given back control of his life.
Another young adult told us of unrelenting bullying and shame, and of how her parents were encouraged to stop giving her insulin and to cure her with holy water. Others described hiding their diabetes, having teachers force them to do pushups in front of the class despite being hypoglycemic, refusing to believe a child could have diabetes, and of health care providers unable to the make the right diagnosis until they entered a coma.
But for the most part, these were horror stories of years past. Now, due to the Ethiopian Diabetes Association, a better Ethiopian health care system and economy, and because of people like Graham Ogle and the efforts of Life for a Child, things are at least a bit better.
There are monthly education classes for families, support groups, camps (they bring children as young as 4 to overnight diabetes camps without their parents), media coverage of diabetes in children, and the Life for a Child program, which, of course, brought us to Ethiopia. The main issue that remains is that of insulin insecurity, coupled with an inadequate food supply. These children rely on Life for a Child – the program is literally keeping most of them alive.
We flew north to the town of Mekelle, in the state of Tigray – close to the Eritrean border (the Ethiopians don’t talk much about the brutal war with Eritrea). There we met the Regional Health Minister, the lead endocrinologist in the area, and the most determined person – a public health nurse – we have ever met. The nurse, called sister in a throw-back to ancient times, is focused on getting enough insulin and supplies to the region so that people will “stop suffering and dying”. First, we went to the relatively-sophisticated regional hospital with three ICU’s (adult, pediatric and neonatal), surgical suites, a laboratory, and one of the busiest diabetes clinics we have ever seen.
Life for a Child doesn’t have the resources to support many of the young people in this region so many families are faced with some terrible challenges. When they have enough insulin, the patients all take shots of regular and NPH insulin two times a day and use the same syringe for a week. None of them have glucose monitoring equipment, or even urine dipsticks. Without Life for a Child, they pay a few dollars for a bottle of insulin that they store in pots of wet sand (most people do not have refrigerators). Those few dollars add up and are more than most can afford – so they skimp on the amount of insulin they take, and as a result, they have elevated glucose levels likely all the time. That is except for the times when they take insulin and don’t have food, in which case they have episodes of severe hypoglycemia.
From Mekelle, we drove 2 hours to a small village called Abi Adi to visit a health center that serves the 500,000 people from all the surrounding rural areas across the country’s northern region and border. They have perceived a huge rise in diabetes incidence – 3 new patients a week over the last few years, mainly in adolescents and young adults, but in children as young as 9 months of age. It was one of the poorest resourced health centers we have ever seen, but with the most incredible and dedicated staff who had handwritten amazing notes, developed a registry of all new patients, and who have amazing diabetes knowledge considering the resources they have and the challenges they face. The staff are on the left of this picture and our tenacious nurse second from right, with patients in the middle surrounding us and Graham.
They conducted a small study that showed the mean A1C was >11% (the study paid for the only A1C tests these patients have ever had) and the mean fasting glucose was 235 mg/dL — too high, but probably better than other similarly resourced hospitals. If we had thought insulin insecurity was a problem in Mekelle, it is a log-scale worse in Adi Abi. When we arrived, they were busy resuscitating an emaciated 15-year-old girl in Diabetic ketoacidosis with IV hydration (without an IV pump), with finger-stick glucose and urine dipstick measurements, and with no other lab tests. She had sores on her feet that weren’t healing, no muscle mass, and stunted growth. But the doctors were ecstatic they could save her life that day.
Our ride home was across the same incredible landscape – the entire countryside we passed through was terraced, spotted with small wooden huts covered with aluminum roofs and there were cows, donkeys, goats and camels grazing or just standing in the middle of the road. The rifts, gorges, and hills we climbed up and down were striped with orange, yellow, and brown colors from the eons of sedimentation that formed this area – which is the beginning of the great Rift Valley where Lucy once roamed.
The 3,500 children in Ethiopia with diabetes who receive all their supplies and care for free from the Life for a Child program are in danger. In fact, all of the 18,500 children in 40 countries across the world who are supported by Life for a Child are equally imperilled because the program needs funds. It needs to raise money, firstly, to continue to provide care for the children currently enrolled and secondly to expand and offer more insulin, more supplies, and take care of more children in need. We cannot let Life for a Child flounder or fail; we cannot even imagine the fate of these children – and all the children yet to come – if that happens. Please help us keep the amazing children we met in Ethiopia alive by donating to Life for a Child.
Fran & Neal Kaufman
You can provide a child with insulin, test strips, diabetes education and clinical care for just 50 cents per day. Make a donation today.
Life for a Child supports over 200 young people living with type 1 diabetes across Jamaica. One of those young people is Bill, a seventeen year old student from Kingston, Jamaica. The Diabetes Association of Jamaica recently sent us this story after one of their staff members had a chat with Bill and his Mom about his diagnosis, school and camp.
Bill is no different from his peers, in the way he looks and behaves. However, he is different……He was diagnosed with type 1 diabetes when he was four years old. Bill’s Mom explained how her son was first diagnosed with diabetes:
“He fractured his right elbow when he was four. We took him to the hospital where they did surgery on his elbow. It lasted nine hours! Shortly after that, he started drinking a lot of water and losing a lot of weight – around 12 pounds! Then the most dramatic thing happened. He started wetting his bed. We took him back to the paediatrician who did some tests. The tests showed that he had diabetes. He was admitted to hospital where he stayed for two long months and we learned how to manage his diabetes.’’
How did he feel after he was diagnosed? I asked Bill’s Mom.
‘’At first he was shy about it. He would cry, become sad and feel different from his friends. Many of the kids didn’t know about Bill’s condition, but the teachers certainly did, and were aware that they should call me if anything was amiss. It was hard to accept at first, that an apparently normal, healthy child at birth could develop diabetes. But as years go by, I realised that Bill has diabetes for life, and you have to learn to live with it as best you can. It’s a long road but there’s a lot to give thanks for. Bill has done very well over the years and his last admission to hospital for his diabetes was when his father died eight years ago”.
Being a single mother is demanding, however Ann-Marie says she has coped because her job provides flexible hours. Over time Bill’s initial sadness and disappointment with having type 1 diabetes has eased and his mother says that his attitude and mood has improved. ”The real change came when he attended a camp for children and young people with diabetes. Here he saw so many other kids with diabetes and he became more accepting of his condition, and felt less alone”.
Bill told us how much he enjoyed camp; “I’ve been to Camp Yellowbird twice. It was a good experience! I felt very comfortable, imagine, everybody the same…everyone has diabetes. I didn’t feel odd! And I met some interesting people. I have a lot of friends, at school and outside” says Bill. He describes himself as easy going and very sociable.
Bill says, “I feel I manage my diabetes quite well. I follow the guidelines given to me by the Diabetes Association of Jamaica. I eat healthily, I take insulin injections every day, I get counselling from time to time and I visit my specialist doctor every six months for a check-up”.
Bill has applied the discipline he has learnt in managing his diabetes to his academic life at high school. Now he is in the lower 6th form, he realises that there’s a vast difference between fifth and sixth form work. A very independent, confident young man, he is a high achiever. He excelled in the CSEC exams with 11 subjects. Focusing on the sciences in lower sixth, his aim is to become a medical doctor. He believes with hard work he can earn a scholarship.
Bill loves sport, and in particular, football and is a keen supporter of his school’s team, so he was thrilled with his school’s recent 2-1 win in a critical match in the Walker’s Cup. He firmly believes in the importance of physical activity. He swims and was a member of his school’s swim team up to last year. He has his own routine of exercising, doing push ups.
Bill is very interested in outreach and has been named the Diabetes Association of Jamaica’s Youth Ambassador. He is anxiously awaiting his first assignment!
Your donations make it possible for Life for a Child to provide Bill with essential insulin, supplies and diabetes education. There are still many children that need our support, make a donation today.
Many of the children supported by Life for a Child face a number of challenges in addition to the management of their type 1 diabetes.
We recently received this story from a supported center in Rwanda which shows that sometimes, unfortunately, these challenges can prove insurmountable.
‘’Claude remembers nothing about his life before 1994. That was the year of the Rwandan genocide which resulted in more than a million deaths and many thousands of others others being exiled to neighboring countries.
Claude was among those Rwandans who fled the country that year At just three years old he found himself in Kampala, Uganda, living with a family thought to include his uncle – He did not remember his parents as he was so young.
While he was growing up, his ‘’cousins’’ went to school, while he was treated as their servant. He began to doubt the relationship with the family because he was treated very differently. He suspected that these people found him during the genocide and lied to him that he was their family member.
When he was 14 years old, Claude started to lose a lot of weight over a short period of time so that his family thought he had the HIV AIDS virus. Instead of helping him by taking him to the hospital, they decided to send him back to Rwanda.
While he was very sick and being taken to the bus station, he realized that the family had never looked after him as they did with their other children – he could be given away once he was no longer useful.
When Claude reached the border between Rwanda and Uganda he was in a coma. The Ugandan police took him to the hospital in Uganda where he was diagnosed with type 1 diabetes. He was passed between the Ugandan and Rwandan police. Within the following year, the Byumban police in northern Rwanda kept him at the police station where he lived between the hospital and the police station. He had many admissions to hospital because his diabetes was not well managed.
While Claude was in Byumba hospital, he met the team of Rwanda Diabetes Association (RDA) who explained how they could seek help for him through Life for a Child sending life-saving insulin and supplies which would allow him to manage his diabetes. Claude was given a glucose meter, glucose strips, insulin and syringes and diabetes education resources. In a short period of time, with regular support from Life for a Child and RDA he was able to improve his blood glucose with no admissions to hospital.
Claude registered in the government’s poverty program, which was building a shelter for the most vulnerable people. Claude was given a house in that program and married the following year. A baby soon followed and he, his wife and baby, lived together happily.
However, Claude wasn’t able to earn enough to support his family, so he again asked the RDA team for help. RDA helped Claude design a small income-generating project. He was collecting fresh milk using a bicycle to deliver milk to the city. He was then able to manage his business and care for his family. His dream was to see his son grow up in better conditions.
Despite the challenges of his life, he did not develop any complications. However, sadly, Claude died of hypoglycemia on 25th August 2017. His wife and neighbors took him to the hospital but it was too late.’’
Claude’s story courtesy of the Rwandan Diabetes Association and illustrates the dreadful challenges that many young people with type 1 diabetes face in less-resourced countries.
Life for a Child is working with RDA to stop tragedies like this happening. We developed a Diabetic Ketoacidosis (DKA) campaign in 2012 to raise awareness of the signs and symptoms of type 1 diabetes. Posters in Kinyarwanda and French were created and distributed locally to community health centers and hospitals. This has helped health professionals to act quickly in treating and managing type 1 diabetes.
Life for a Child has been supporting RDA since 2009 with insulin, test strips, blood glucose meters, diabetes education and mentoring from international experts with expertise in type 1 diabetes in young people.
You can help us support and advocate for young people like Claude, make a donation today.